It has been a crazy day. I had a meeting at 7 am, a meeting at 12 pm, a meeting at 2 pm, and a meeting at 6:45 pm. I have not had time to post today. It has been a crazy day! I feel like the past week all I have done is sit in meetings. We are in the midst of a few transitions in our church community and so it takes a lot of communication and meetings to all get on the same page. So, that has been my lot in life lately. It is very draining. I am not complaining, just stating a fact. All the meetings have been very good and I am super excited about the things that are taking place. It just takes some time to get them going.
Caleb didn't have a good day today. His counts are probably getting low (we find out tomorrow) and so he has felt like poop all day. There is nothing major happening, he just drags around and doesn't seem to feel well at all. He has complained that his bones hurt a bit, that his stomach hurts a bit, that his back hurts a bit, etc. Nothing is so painful that he can't live, but it is enough that it makes life annoying for sure.
Caleb has an appointment tomorrow at 11 am. They will take blood and see where his levels are. We will also meet with Dr. Rosen again and hear more information about the 3rd cycle and what it will look like. It will be good to know what it will be and be able to form a plan for the next little bit. Of course it can always change in a moment, but at least we can feel like we are preparing.
We called the nurse today about Caleb's pain and she said that as long as he doesn't have a fever or isn't in pain that doesn't allow him to function, there isn't much they can do. She said that the bones hurting may actually be good. We give Caleb his daily shot and it is supposed to get his bones making white blood cells. She said his bones may actually be working harder and thus this may be causing them to hurt. Obviously she doesn't know, but she said it is a possibility.
Tomorrow, we are praying for good counts and a turn around in how he is feeling. Depending on his counts, he could also receive a blood transfusion tomorrow as well. But, we are hoping for good counts and that they are heading back up in the right direction.
Cooper, Caleb's friend, has had a rough couple of days. He has had a fever the past couple of days and has been in and out of the hospital. He was in the clinic all day and if he still has a temperature in the morning, they will have to check him into the hospital. So, when you pray for Caleb, pray for Cooper as well. Also pray for his family as they are experiencing a lot of the same emotions we are and we appreciate all the prayers for sure.
I will keep you posted throughout the day tomorrow on Caleb's counts and how he is doing! I will also try and write the next installment of suffering. I have an entry I really want to work on and so I need to work on it.
Talk with you tomorrow!
Grace and Peace
Thanks for all the prayers and support.
Praying for Caleb and cooper!
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