Sorry I did not post yesterday. It has been a good two days and we have been hanging with the Gokee family in the hospital the past couple of days. Cooper is in the hospital because he had a fever and his counts were really low. We hate that he is in the hospital...we are praying for his counts to come up so that he can go home. But, it has been nice having them here and being able to hang together. The past two days, we have been together in the morning and then normally we head to the 3rd floor patio in the afternoon and stay there through dinner until 8 pm or so. We play Monoply Deal, we talk, we laugh, we tell stories and honestly it has been an awesome time to get to know them better. Once again, the circustance is not what we want but we are making the best of where we are.
Caleb is currently getting chemo. The chemo he is getting runs 24 hours a day for 5 days. He started it Sunday morning, so we are here until Friday morning. The good thing is that these meds should not cause his counts to drop and thus we do not have to do the daily shot when we go home.
We have his normal clinic visit next Thursday and then we check back in on June 14th for his final round of chemo. It will be identical meds that this current chemo treatment is.
After that, he will get scanned again...this time it will include a bone marrow test again...and believing that all will be clear we will be done. We will then schedule for his port to come out and start having check ups every 3 months for awhile.
Caleb has felt good today, but not great. The current chemo he is getting has the potential for flu like symptoms and he has been having several of them. This evening, he was feeling sick at his stomach and said that his bones were achy. The nurses have been awesome as far as treating his symptoms, but it still doesn't mean that he is without them. So, pray for small or no side effects, or pray for grace to get through them all.
Caleb was also feeling a bit tired today, so we took a nap together. That was awesome and I think the only way he would have gone to sleep...not alone but with company. So, we slept. He probably would have slept longer, but as is normal in a hospital, someone came in and made a little noise and it woke him up. He seemed to feel a lot better after his nap though. Who doesn't?
So, things are good. We are just doing our best to kill time. It isn't always easy, but as Dr. Dan says, there are worse things than being bored. As I said, having Cooper and his family here helps a lot.
I will try and post more tomorrow. It will be a busy day with a few meetings and work, but I will do my best to keep you updated on what is happening.
Have a great night!
Grace and Peace
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