Today was a good day on many levels. Caleb hasn't felt the greatest, but it has been a good day.
Caleb slept pretty good. He woke up feeling pretty good. He had a little soreness in his body, but he seemed to manage the pain pretty well.
I went to staff meeting and left a little early so that we could get to the clinic on time.
When we got to the clinic, it was business as usual. We accessed his port and had some blood drawn. We waited on the results and Dr. Rosen to come in and let us know how Caleb was doing. Port access went really well. Caleb did awesome!
When the Dr. came in, she said his counts were 1, 080. That is really good! No blood transfusion needed! They are not as high as we would like them, but they are coming back up from being down for sure. So, we must continue the daily shot for now. We should be able to stop them on Monday. His counts need to be 3,000 in order to stop them.
The Dr. gave us a bit more information about what the next steps will look like. On Monday, he will get scanned again...PET scan is what they call it. That happens at 11 am. Before that, they will draw some blood for his counts to make sure they are above 3,000. Then, he will start his next round of chemo on Friday. We will check in Friday morning and be in the hospital for at least 4-5 days for the next round. Also, Friday morning is when we will meet with the Dr. to find out what the scans show.
Monday and Friday are big days. Friday is probably the bigger of the two. Monday he gets scanned, which is a big deal. But Friday we will find out the results from the scan. Based on what the Dr. sees in the scans, she will chart out the rest of this treatment. If she still sees some cancer, then we are looking at 2 more heavy rounds of chemo and then 4 more what they call maintenance rounds. Here is the crazy thing...if the scans look good and they do not see anything else, then he will have his last two rounds of chemo and be done! Isn't that crazy! This could all be over in 6 weeks. We really don't want to jump ahead of ourselves but it is hard not to think about.
So, we are still just living a day at a time. But, as you pray, know that a week from tomorrow is a huge day on this journey. We are praying for God's grace in all of it and believe that no matter what the results are He will be with us through it all! We would love the shorter time frame but ultimately we want Caleb better and if that means longer and more treatments, then that is what we will do.
We were only in the clinic for 1 1/2 hours (shortest time yet).
After we left the clinic, we went to grab a quick bite of lunch and then met Caleb's class at a froyo place. They had earned an ice cream party and wanted him to come and join them. They thought that he was not going to be able to be there and were so excited to see him there when they arrived. It was an awesome sight and it is so cool to see his friends miss him and rally around him.
After that, I had a meeting at church so Tera and Caleb came home and watched movies together. We are trying to make him rest as much as possible even though he feels like he could run and do whatever he wants. This isn't always easy, but we try!
Tomorrow should be a chill day for him. I have a couple of meetings I need to go to, but other than that we will be chilling.
Life is good! It isn't always easy but it is good! We are celebrating our day today and believe that tomorrow will bring some challenges but will be good as well.
Have a great day! Sorry this is so long!
Grace and Peace
So amazed how Our Father helps you continue with strength and encouraged hearts. As the saying goes: "Don't measure the size of the mountain, talk to the One who can move it." Praying for you and Tera as you set such a huge example for your children about faith and trusting God. (And the ripple effect it is having on all of us !!)
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